Rare Dementia Support
A diagnosis of any kind of cognitive impairment brings concerns and questions for those with the disease, their families and friends. When it affects younger people and when the form of dementia is rare, the problems that may be faced can be complex.
The Rare Dementia Support Fund is part of The National Brain Appeal (charity number 290173) and the result of a merger of two previous funds – the Myrtle Ellis Fund and the FTD Support Group Fund. It provides regular support group meetings, newsletters, telephone contact networks, websites and access to information and advice for people affected by six rare dementia:
Please see the Rare Dementia Support Fund website and, for more information about any of our groups, please contact Rachel by email [email protected] or call 073 4177 6317.
The Rare Dementia Support Fund is part of The National Brain Appeal (charity number 290173) and the result of a merger of two previous funds – the Myrtle Ellis Fund and the FTD Support Group Fund. It provides regular support group meetings, newsletters, telephone contact networks, websites and access to information and advice for people affected by six rare dementia:
- Posterior Cortical Atrophy (PCA) – a progressive disorder of vision which affects skills such as reading, driving and seeing what and where things are. PCA involves damage to the brain not the eyes and is most commonly caused by Alzheimer’s Disease
- Primary Progressive Aphasia (PPA) – a degenerative condition associated with the gradual loss of the ability to understand and/or produce speech
- Familial Alzheimer’s Disease (FAD) – the directly genetically-inherited form of Alzheimer’s Disease typically affecting people in their 30s, 40s and 50s
- Frontotemporal Dementia (FTD) – also known as Pick's Disease
- Familial Frontotemporal Dementia (fFTD) – the inherited form of frontotemporal dementia caused by mutations in the tau, progranulin or C9ORF72 genes
- Lewy Body Dementia (DLB) - a less common form of dementia that is closely related to Parkinson's disease
- Young-Onset Alzeimer's Disease (YOAD) - affecting people in their 40s, 50s and early 60s
Please see the Rare Dementia Support Fund website and, for more information about any of our groups, please contact Rachel by email [email protected] or call 073 4177 6317.